Resources

Here is a list of useful resources for volunteers interested in expanding their knowledge regarding Parkinson’s research.

Parkinson’s UK:

It is worth spending some time getting to grips with Parkinson’s UK’s web site.  Lots of useful info, but can be difficult to navigate. Some useful short cuts:

Clinical trials:

Therapies in development. Overview by Kevin McFarthing.

http://ClinicalTrials.gov is a registry of clinical trials. It is run by the United States National Library of Medicine (NLM) at the National Institutes of Health, and is the largest clinical trials database, currently holding registrations from over 230,000 trials from 195 countries in the world.

Exercise:

Parkinson’s exercise framework

Local resources:

The Barker lab, based at the John van Geest Centre for Brain Repair, Addenbrookes site, Cambridge is a major center for research on Parkinson’s disease.

Cambridge clinical trials unit’s (CCTU) “Patient Led
Research Hub” supports patient-led research, working in partnership with patient groups to deliver clinical studies based on their own research questions.

Videos, talks, presentations:

The Gretchen Amphlett Lecture 2018.  The archived lecture can be found on You Tube:   This year’s  lectures, introduced by EoERIG member Ruth Herman, featured Dr Simon Stott, Research Associate at the University of Cambridge, who discussed his collaborative research on breath analysis technology being used to identify people with Parkinson’s. In addition Professor Oliver Bandmann described world-leading research from the Sheffield Institute of Translational Neuroscience where his team are using samples of skin cells to better understand Parkinson’s.

Other useful Web sites:

Parkinson’s Research Interest Group  on FaceBook, aims to increase awareness of and participation in PD research by highlighting progress and opportunities to participate.

The Science of Parkinson’s.  Plain English information from Simon Stott, Barker Lab, about the research being conducted on Parkinson’s.

Parkinson’s News Today.  A regular digest of Parkinson’s research news from around the world

Michael J Fox Foundation

The Perky Parky.   Young onset PD sufferer.  Writes humorous blog about life with PD.

Research archives:

Europe Pubmed Central.  Want to read the latest research? Europe PMC is a repository, providing free access to worldwide life sciences articles, books, patents and clinical guidelines.

Uniprot.  Want to know all there is to know about alpha synuclein?  The mission of UniProt is to provide the scientific community with a comprehensive, high-quality and freely accessible resource of protein sequence and functional information.

In preparation:

  • Primer on how to search public databases of research and clinical information,, such as PubMed, Europe PubMed, ClinicalTrials.gov, etc.
  • What to look out for when assessing research claims.
  • Library of recent review articles about P
  • PD primer and jargon buster
  • Latest PUK research funding strategy documents