RIGeast
Useful resources for volunteers interested in the main trends in Parkinson’s research
RESEARCH
Here is a list of useful resources for volunteers interested in expanding their knowledge of the main trends in Parkinson’s research. [Last updated 15 Dec 2020]
Parkinson’s UK
It is worth spending some time getting to grips with Parkinson’s UK’s web site. Lots of useful info, but it can be difficult to navigate. Some selected short cuts:
Popular Blogs
Useful review articles in the scientific literature
If you want to go more deeply into the research driving the frontiers of Parkinson’s, you are going to have to invest time in getting to grips with the scientific literature. General review articles:
Specific Areas
Clinical Trials
General:
Specific:
Exercise
Exercise is important for people with Parkinson’s disease because it helps maintain balance, mobility, and the ability to perform daily routines.
Local Resources
The Barker lab, based at the John van Geest Centre for Brain Repair, Addenbrookes site, Cambridge is a major center for research on Parkinson’s disease.
Cambridge clinical trials unit’s (CCTU) “Patient Led Research Hub” supports patient-led research, working in partnership with patient groups to deliver clinical studies based on their own research questions.
Videos, Talks and Presentations
The Gretchen Amphlett Lecture 2019. The archived lecture can be found on You Tube: This year’s lectures featured Professor Roger Barker and Dr Beckie Port and provided insight on the landmarks in Parkinson’s research over the last 10 years. Barker’s talk provides a rare overview of where the cutting edges of PD research lie. It is quite detailed but well worth the effort of getting to grips with the key themes.
Other useful websites
Parkinson’s Research Interest Group on FaceBook, aims to increase awareness of and participation in PD research by highlighting progress and opportunities to participate.
The Science of Parkinson’s. Plain English information from Simon Stott, Cure Parkinson’s Trust, about the research being conducted on Parkinson’s.
Parkinson’s News Today. A regular digest of Parkinson’s research news from around the world
The Perky Parky. Young onset PD sufferer. Writes humorous blog about life with PD.
Research Archives
Europe Pubmed Central. Want to read the latest research? Europe PMC is a repository, providing free access to worldwide life sciences articles, books, patents and clinical guidelines.
Uniprot. Want to know all there is to know about alpha synuclein? The mission of UniProt is to provide the scientific community with a comprehensive, high-quality and freely accessible resource of protein sequence and functional information.
Full test
If you are having problems getting hold of a paywall, either try emailing the author or go to unpaywall.org.