The Colney Heath Chronicles - by Dr Ruth Herman Although it’s not Parkinsons Research I have written a little book which will hopefully raise some money for Parkinson's research. It will also indirectly benefit other branches. Colney Heath Chronicles is a new light-hearted history of a tiny village which has cosied up to St Albans [...]
Working Age Research Survey Needs YOU!
What: This study will look at patient experiences of Parkinson’s as a younger/middle-aged adult (between 21-65 years). It aims to explore how individuals cope with the psychological challenges of their condition, the impact of their interactions with healthcare professionals, and how these factors relate to their age. This study will use a survey of [...]
Volunteers wanted for study to Understand variability in Parkinson’s
Understanding variability in Parkinson's. This study hopes to develop a method for diagnosing and predicting the progression of Parkinson's.
Decoding Our Biological Stew
A patients perspective Following our involvement hosting the panel session at the 10th Gretchen Amphlett lecture in April 2019, the East of England Research Interest Group were privileged to be asked to represent patients with Parkinson's at the CamBioScience research conference on 'Development of the Dopaminergic System: From Stem Cells to Circuits' otherwise known as DDSSCC2019. [...]
Parkinson’s UK Research Workshop
Parkinson’s UK Research Workshop (5 April 2019) Poster – Parkinson’s UK Research Workshop (5 April 2019) Are you interested in finding out more about Parkinson’s research? Hear from our research team on the latest developments, meet other people affected by the condition and find out how you can [...]
‘Skin in the game’ for Parkinsons Research
Did you know that there is an All-Party Parliamentary Group on Parkinson’s who’s purpose is to raise awareness of the condition among parliamentarians and influence legislation and policy makers to improve the lives of people affected by the condition. Andrew and Dave his father attended the November meeting in the Houses of Parliament to talk about [...]
Volunteers wanted for motivation study
My name is Dr Claire O’Callaghan, I am a Parkinson’s disease researcher working with Professor James Rowe at the University of Cambridge. We are looking for a further 30 people with Parkinson's to take part in our research. We are running a study to see if a drug called atomoxetine might help with motivation problems [...]
EUPATI-UK Mini Course 2018
Patient Involvement in medicines development R&D: making a difference A few Parkinsons UK volunteers and staff were recently privileged to attend this EUPATI workshop hosted at the GSK HQ in London, and came away enthused and brimming with plenty of new ideas, contacts and resources. Anyone involved in PPI (Patient and Public Involvement) for medical research [...]
Headway Suffolk Neuro Conference 2018
From the child brain to brainy dogs, dementia and headaches Another packed hall for the fourth annual near conference at the Kesgrave Conference Centre on Wednesday 17 October 2018. Presentations were given by six distinguished speakers across a range of subjects related to brain injury and neurology, alongside related stalls offering further information. Dr Jane Hawking, [...]
PD Related Suggested Reading…
There are plenty of publications out there related to Parkinsons which provide an alternative way to expand your knowledge and awareness of the condition and relevant research. If you have read something and wish to write a short review we would love to share it for our fellow champions to find out about and possibly comment.