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    Research,  Take Part

    Working Age Research Survey Needs YOU!

    What: This study will look at patient experiences of Parkinson’s as a younger/middle-aged adult (between 21-65 years). It aims to explore how individuals cope with the psychological challenges of their condition, the impact of their interactions with healthcare professionals, and how these factors relate to their age. This study will use a survey of eleven questions, using an online form. Responses will then be analysed using interpretative phenomenological analysis (IPA) in order to understand: The illness experience in the context of the atypical age of onset The ways in which patients learn to cope with Parkinson’s How important patients consider information about Parkinson’s during diagnosis Patient’s thoughts on the role…

  • Research,  Research Champions,  Take Part

    ‘Skin in the game’ for Parkinsons Research

    Did you know that there is an All-Party Parliamentary Group on Parkinson’s who’s purpose is to raise awareness of the condition among parliamentarians and influence legislation and policy makers to improve the lives of people affected by the condition. Andrew and Dave his father attended the November meeting in the Houses of Parliament to talk about their experience of supporting Parkinson’s research. This is what Andrew had to say… “Thank you for inviting me and my dad down to talk with you and share our story for why public & patient involvement in Parkinsons research is so important to us…

  • Research,  Take Part

    Volunteers wanted for motivation study

    My name is Dr Claire O’Callaghan, I am a Parkinson’s disease researcher working with Professor James Rowe at the University of Cambridge. We are looking for a further 30 people with Parkinson’s to take part in our research. We are running a study to see if a drug called atomoxetine might help with motivation problems that can occur in Parkinson’s. Loss of motivation, or “apathy”, can significantly impact some people with Parkinson’s. We believe that atomoxetine, which boosts levels of a chemical called noradrenaline in the brain, could help with this symptom. Atomoxetine is a safe drug that is widely used in other conditions, the idea behind our study is…