What: This study will look at patient experiences of Parkinson’s as a younger/middle-aged adult (between 21-65 years). It aims to explore how individuals cope with the psychological challenges of their condition, the impact of their interactions with healthcare professionals, and how these factors relate to their age. This study will use a survey of [...]
A patients perspective Following our involvement hosting the panel session at the 10th Gretchen Amphlett lecture in April 2019, the East of England Research Interest Group were privileged to be asked to represent patients with Parkinson's at the CamBioScience research conference on 'Development of the Dopaminergic System: From Stem Cells to Circuits' otherwise known as DDSSCC2019. [...]
Parkinson’s UK Research Workshop (5 April 2019) Poster – Parkinson’s UK Research Workshop (5 April 2019) Are you interested in finding out more about Parkinson’s research? Hear from our research team on the latest developments, meet other people affected by the condition and find out how you can [...]
Did you know that there is an All-Party Parliamentary Group on Parkinson’s who’s purpose is to raise awareness of the condition among parliamentarians and influence legislation and policy makers to improve the lives of people affected by the condition. Andrew and Dave his father attended the November meeting in the Houses of Parliament to talk about [...]
My name is Dr Claire O’Callaghan, I am a Parkinson’s disease researcher working with Professor James Rowe at the University of Cambridge. We are looking for a further 30 people with Parkinson's to take part in our research. We are running a study to see if a drug called atomoxetine might help with motivation problems [...]
Patient Involvement in medicines development R&D: making a difference A few Parkinsons UK volunteers and staff were recently privileged to attend this EUPATI workshop hosted at the GSK HQ in London, and came away enthused and brimming with plenty of new ideas, contacts and resources. Anyone involved in PPI (Patient and Public Involvement) for medical research [...]
Prof Giovanna Malluci delivered the 7th Edinburgh Parkinson's Lecture at the University of Edinburgh on Monday, 17th September, 2018 This fascinating talk describes a different approach taken to research which has yielded very promising results in mice models, and not just for Parkinsons but many other neurodegenerative diseases. Replay the video here: https://media.ed.ac.uk/media/The+Edinburgh+Parkinson's+Lecture+2018/1_ew09ukjo Thanks to our [...]
Photo by Michael Fischer on Pexels.com Cannabis-derived medical products have been in the news lately, after two boys with epilepsy had their treatments taken away from them. On the back of the spike in public profile, the government has moved to legalise such products in cases of 'exceptional clinical need'. In turn, Parkinson's [...]
