• DDSSCC2019 Attendees
    PPI,  Research

    Decoding Our Biological Stew

    A patients perspective Following our involvement hosting the panel session at the 10th Gretchen Amphlett lecture in April 2019, the East of England Research Interest Group  were privileged to be asked to represent patients with Parkinson’s at the CamBioScience research conference on ‘Development of the Dopaminergic System: From Stem Cells to Circuits‘ otherwise known as DDSSCC2019.  This post represents my personal views as the lucky member of the RIGeast steering board available to attend, 13-15 May 2019 at the Fodele Beach Hotel, Crete. Much gratitude is owed to CamBioScience and Parkinson’s UK Research Support Network for enabling our participation in this conference. Further details are available online in the conference abstract booklet …

  • EUPATI Toolbox
    Event,  Get Connected,  Have your say,  Parkinsons UK,  Research

    EUPATI-UK Mini Course 2018

    Patient Involvement in medicines development R&D: making a difference A few Parkinsons UK volunteers and staff were recently privileged to attend this EUPATI workshop hosted at the GSK HQ in London, and came away enthused and brimming with plenty of new ideas, contacts and resources. Anyone involved in PPI (Patient and Public Involvement) for medical research and development ought to be aware of this valuable work and free Creative Commons resources.