Patient Involvement in medicines development R&D: making a difference A few Parkinsons UK volunteers and staff were recently privileged to attend this EUPATI workshop hosted at the GSK HQ in London, and came away enthused and brimming with plenty of new ideas, contacts and resources. Anyone involved in PPI (Patient and Public Involvement) for medical research [...]
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From the child brain to brainy dogs, dementia and headaches Another packed hall for the fourth annual near conference at the Kesgrave Conference Centre on Wednesday 17 October 2018. Presentations were given by six distinguished speakers across a range of subjects related to brain injury and neurology, alongside related stalls offering further information. Dr Jane Hawking, [...]
There are plenty of publications out there related to Parkinsons which provide an alternative way to expand your knowledge and awareness of the condition and relevant research. If you have read something and wish to write a short review we would love to share it for our fellow champions to find out about and possibly comment.
Prof Giovanna Malluci delivered the 7th Edinburgh Parkinson's Lecture at the University of Edinburgh on Monday, 17th September, 2018 This fascinating talk describes a different approach taken to research which has yielded very promising results in mice models, and not just for Parkinsons but many other neurodegenerative diseases. Replay the video here: https://media.ed.ac.uk/media/The+Edinburgh+Parkinson's+Lecture+2018/1_ew09ukjo Thanks to our [...]
Photo by Michael Fischer on Pexels.com Cannabis-derived medical products have been in the news lately, after two boys with epilepsy had their treatments taken away from them. On the back of the spike in public profile, the government has moved to legalise such products in cases of 'exceptional clinical need'. In turn, Parkinson's [...]
Sue Wyie’s film is being shown at the Cambridge Film Festival later this month. Sue’s experience of being diagnosed with Parkinson’s spurred her on to write a play called Kinetics: Parkour and Parkinson’s, which is now a film, Kinetics: The Desire to Move. Kinetics explores her coming to terms with the shock of her diagnosis [...]
Recently diagnosed with Parkinson's? Join us for a day to find out what's on in Essex to help you take control. Chelmsford 31 Oct 2018 10am-3pm, Wednesday 31 October 2018 Christ Church URC rooms, 164 New London Road, Chelmsford, CM2 0AW Partner/ supporter welcome. Free lunch included - booking required. For further [...]
Diagnosed four years ago, Ruth is still doing pretty well and participating in Parkinson' UK activities. Her volunteering for the chairty includes speaker secretary and committee membr of the West Herts Branch, and of course membership of the East of England Research Group. She is not a scientist and her background is firmly in the [...]