• RIG

    Lessons from Cornwall RIG

    John, with Parkinson’s, and Sue have been involved with the RSN since its inception and Public and Patient Involvement with the NIHR for a good many years. However, their role as VRC has really been what they choose to make it within the bounds of Parkinson’s UK. Why do we do it? When we moved to Cornwall nine years ago we struggled to find information on local research. Nobody really knew what was going on in the area. We met an excellent Consultant who spoke about research and asked if we were interested. We jumped at the chance. Through that consultant we were able to fill in the usual paper scales…

  • Event,  RIG

    Ruth Herman (EoE RIG)

    Diagnosed four years ago, Ruth is still doing pretty well and participating in Parkinson’ UK activities.  Her volunteering for the chairty includes speaker secretary and committee membr of the West Herts Branch, and of course membership of the East of England Research Group.  She is not a scientist and her background is firmly in the area of communication.  With a PhD in propaganda (18th century style) she is wary of any writing that is not clear and accessible to its intended audience. So her aim in the Group is to encourage researchers to think about the words and other communication tools they are using to get their message to the…