• Research Champions

    Questions for existing Research Champions

    Parkinson’s UK has established a Research Interest Group for the East of England .  It’s main objective is to help to increase the awareness of the importance of research throughout the 40 local groups and to recruit, train and support new Research Champions.  For this reason we would like to gain from the experience of existing RCs by asking you the following questions.   Why did you become a Research Champion. How steep was the learning curve and could it have been made easier to climb?? What research-related activities is your  group typically interested in? How could the East of England  RIG support you and your group? What advice would…

  • RIG

    Lessons from Cornwall RIG

    John, with Parkinson’s, and Sue have been involved with the RSN since its inception and Public and Patient Involvement with the NIHR for a good many years. However, their role as VRC has really been what they choose to make it within the bounds of Parkinson’s UK. Why do we do it? When we moved to Cornwall nine years ago we struggled to find information on local research. Nobody really knew what was going on in the area. We met an excellent Consultant who spoke about research and asked if we were interested. We jumped at the chance. Through that consultant we were able to fill in the usual paper scales…

  • Event,  RIG

    Ruth Herman (EoE RIG)

    Diagnosed four years ago, Ruth is still doing pretty well and participating in Parkinson’ UK activities.  Her volunteering for the chairty includes speaker secretary and committee membr of the West Herts Branch, and of course membership of the East of England Research Group.  She is not a scientist and her background is firmly in the area of communication.  With a PhD in propaganda (18th century style) she is wary of any writing that is not clear and accessible to its intended audience. So her aim in the Group is to encourage researchers to think about the words and other communication tools they are using to get their message to the…