• Event

    Kinetics: Parkour and Parkinsons

    Sue Wyie’s film is being shown at the Cambridge Film Festival later this month. Sue’s experience of being diagnosed with Parkinson’s spurred her on to write a play called Kinetics: Parkour and Parkinson’s, which is now a film, Kinetics: The Desire to Move. Kinetics explores her coming to terms with the shock of her diagnosis while working as a drama teacher, and her unlikely real-life friendship with a rebellious 16-year-old student who is found free running on the school roof. Sue’s film has already done so much to raise awareness of Parkinson’s and to help others who are coming to terms with their own diagnosis. Here’s a link to the…

  • Event

    Taking Control of Parkinsons – 31Oct18

    Recently diagnosed with Parkinson’s? Join us for a day to find out what’s on in Essex to help you take control.   10am-3pm, Wednesday 31 October 2018 Christ Church URC rooms, 164 New London Road, Chelmsford, CM2 0AW Partner/ supporter welcome. Free lunch included – booking required. For further details and to register a place contact Kecia Harris kharris@parkinsons.org.uk or call 0300 123 3676     Note change in venue due to power cut at the original venue. PARKING:  The postcode won’t take you to the parking, Below is a map of how to get to the parking on Bradford St and a photo of what it looks like from…

  • Research Champions

    Questions for existing Research Champions

    Parkinson’s UK has established a Research Interest Group for the East of England .  It’s main objective is to help to increase the awareness of the importance of research throughout the 40 local groups and to recruit, train and support new Research Champions.  For this reason we would like to gain from the experience of existing RCs by asking you the following questions.   Why did you become a Research Champion. How steep was the learning curve and could it have been made easier to climb?? What research-related activities is your  group typically interested in? How could the East of England  RIG support you and your group? What advice would…

  • RIG

    Lessons from Cornwall RIG

    John, with Parkinson’s, and Sue have been involved with the RSN since its inception and Public and Patient Involvement with the NIHR for a good many years. However, their role as VRC has really been what they choose to make it within the bounds of Parkinson’s UK. Why do we do it? When we moved to Cornwall nine years ago we struggled to find information on local research. Nobody really knew what was going on in the area. We met an excellent Consultant who spoke about research and asked if we were interested. We jumped at the chance. Through that consultant we were able to fill in the usual paper scales…

  • Event,  RIG

    Ruth Herman (EoE RIG)

    Diagnosed four years ago, Ruth is still doing pretty well and participating in Parkinson’ UK activities.  Her volunteering for the chairty includes speaker secretary and committee membr of the West Herts Branch, and of course membership of the East of England Research Group.  She is not a scientist and her background is firmly in the area of communication.  With a PhD in propaganda (18th century style) she is wary of any writing that is not clear and accessible to its intended audience. So her aim in the Group is to encourage researchers to think about the words and other communication tools they are using to get their message to the…