• DDSSCC2019 Attendees
    PPI,  Research

    Decoding Our Biological Stew

    A patients perspective Following our involvement hosting the panel session at the 10th Gretchen Amphlett lecture in April 2019, the East of England Research Interest Group  were privileged to be asked to represent patients with Parkinson’s at the CamBioScience research conference on ‘Development of the Dopaminergic System: From Stem Cells to Circuits‘ otherwise known as DDSSCC2019.  This post represents my personal views as the lucky member of the RIGeast steering board available to attend, 13-15 May 2019 at the Fodele Beach Hotel, Crete. Much gratitude is owed to CamBioScience and Parkinson’s UK Research Support Network for enabling our participation in this conference. Further details are available online in the conference abstract booklet …

  • Parkinson's UK Research Workshop (5 April 2019)
    Event,  Get Connected,  Networking,  Parkinsons UK,  Research,  RIG

    Parkinson’s UK Research Workshop

    Poster – Parkinson’s UK Research Workshop (5 April 2019) Are you interested in finding out more about Parkinson’s research? Hear from our research team on the latest developments, meet other people affected by the condition and find out how you can help in the search for a cure. Light refreshments will be provided. Places are free but must be booked in advance. Call James Bunting, Research Events Officer, on 0207 963 9315

  • Research,  Research Champions,  Take Part

    ‘Skin in the game’ for Parkinsons Research

    Did you know that there is an All-Party Parliamentary Group on Parkinson’s who’s purpose is to raise awareness of the condition among parliamentarians and influence legislation and policy makers to improve the lives of people affected by the condition. Andrew and Dave his father attended the November meeting in the Houses of Parliament to talk about their experience of supporting Parkinson’s research. This is what Andrew had to say… “Thank you for inviting me and my dad down to talk with you and share our story for why public & patient involvement in Parkinsons research is so important to us…

  • Research,  Take Part

    Volunteers wanted for motivation study

    My name is Dr Claire O’Callaghan, I am a Parkinson’s disease researcher working with Professor James Rowe at the University of Cambridge. We are looking for a further 30 people with Parkinson’s to take part in our research. We are running a study to see if a drug called atomoxetine might help with motivation problems that can occur in Parkinson’s. Loss of motivation, or “apathy”, can significantly impact some people with Parkinson’s. We believe that atomoxetine, which boosts levels of a chemical called noradrenaline in the brain, could help with this symptom. Atomoxetine is a safe drug that is widely used in other conditions, the idea behind our study is…

  • EUPATI Toolbox
    Event,  Get Connected,  Have your say,  Parkinsons UK,  Research

    EUPATI-UK Mini Course 2018

    Patient Involvement in medicines development R&D: making a difference A few Parkinsons UK volunteers and staff were recently privileged to attend this EUPATI workshop hosted at the GSK HQ in London, and came away enthused and brimming with plenty of new ideas, contacts and resources. Anyone involved in PPI (Patient and Public Involvement) for medical research and development ought to be aware of this valuable work and free Creative Commons resources. 

  • How we learn, the child brain
    Event

    Headway Suffolk Neuro Conference 2018

    From the child brain to brainy dogs, dementia and headaches Another packed hall for the fourth annual near conference at the Kesgrave Conference Centre on Wednesday 17 October 2018. Presentations were given by six distinguished speakers across a range of subjects related to brain injury and neurology, alongside related stalls offering further information. Dr Jane Hawking, Patron of Headway Suffolk, returned for her second conference and spoke about changing attitudes to disability based on the time she cared for her first husband, famed scientist Professor Stephen Hawking. Lord Winston, an internationally-renowned professor gave a captivating  talk about the child’s brain and how the human mind works. When asked about Parkinsons Disease…

  • Reading

    PD Related Suggested Reading…

    There are plenty of publications out there related to Parkinsons which provide an alternative way to expand your knowledge and awareness of the condition and relevant research.  If you have read something and wish to write a short review we would love to share it for our fellow champions to find out about and possibly comment. 

  • Event,  Replay,  Research,  RIG

    The road to new treatments for Parkinson’s and dementia

    Prof Giovanna Malluci delivered the 7th Edinburgh Parkinson’s Lecture at the University of Edinburgh on Monday, 17th September, 2018 This fascinating talk describes a different approach taken to research which has yielded very promising results in mice models, and not just for Parkinsons but many other neurodegenerative diseases. Replay the video here: https://media.ed.ac.uk/media/The+Edinburgh+Parkinson’s+Lecture+2018/1_ew09ukjo Thanks to our sister group at the Edinburgh Parkinsons Research Interest Group for organising this talk and recording.

  • News,  Parkinsons UK,  Research

    Medical cannabis and Parkinson’s UK 

    Cannabis-derived medical products have been in the news lately, after two boys with epilepsy had their treatments taken away from them.  On the back of the spike in public profile, the government has moved to legalise such products in cases of ‘exceptional clinical need’. In turn, Parkinson’s UK has moved to support this shift – comparing the re-classification to how morphine is used in medicine. The statement in response also made reference to the potential benefits of cannabidiol for Parkinson’s symptoms such as pain and sleep problems.   Parkinson’s UK head of policy and campaigning Laura Cockram said: “We want to seek the views of people with Parkinson’s to guide…

  • Event

    Kinetics: Parkour and Parkinsons

    Sue Wyie’s film is being shown at the Cambridge Film Festival later this month. Sue’s experience of being diagnosed with Parkinson’s spurred her on to write a play called Kinetics: Parkour and Parkinson’s, which is now a film, Kinetics: The Desire to Move. Kinetics explores her coming to terms with the shock of her diagnosis while working as a drama teacher, and her unlikely real-life friendship with a rebellious 16-year-old student who is found free running on the school roof. Sue’s film has already done so much to raise awareness of Parkinson’s and to help others who are coming to terms with their own diagnosis. Here’s a link to the…