Did you know that there is an All-Party Parliamentary Group on Parkinson’s who’s purpose is to raise awareness of the condition among parliamentarians and influence legislation and policy makers to improve the lives of people affected by the condition. Andrew and Dave his father attended the November meeting in the Houses of Parliament to talk about their experience of supporting Parkinson’s research. This is what Andrew had to say… “Thank you for inviting me and my dad down to talk with you and share our story for why public & patient involvement in Parkinsons research is so important to us…
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Questions for existing Research Champions
Parkinson’s UK has established a Research Interest Group for the East of England . It’s main objective is to help to increase the awareness of the importance of research throughout the 40 local groups and to recruit, train and support new Research Champions. For this reason we would like to gain from the experience of existing RCs by asking you the following questions. Why did you become a Research Champion. How steep was the learning curve and could it have been made easier to climb?? What research-related activities is your group typically interested in? How could the East of England RIG support you and your group? What advice would…