• EUPATI Toolbox
    Event,  Get Connected,  Have your say,  Parkinsons UK,  Research

    EUPATI-UK Mini Course 2018

    Patient Involvement in medicines development R&D: making a difference A few Parkinsons UK volunteers and staff were recently privileged to attend this EUPATI workshop hosted at the GSK HQ in London, and came away enthused and brimming with plenty of new ideas, contacts and resources. Anyone involved in PPI (Patient and Public Involvement) for medical research and development ought to be aware of this valuable work and free Creative Commons resources. 

  • How we learn, the child brain

    Headway Suffolk Neuro Conference 2018

    From the child brain to brainy dogs, dementia and headaches Another packed hall for the fourth annual near conference at the Kesgrave Conference Centre on Wednesday 17 October 2018. Presentations were given by six distinguished speakers across a range of subjects related to brain injury and neurology, alongside related stalls offering further information. Dr Jane Hawking, Patron of Headway Suffolk, returned for her second conference and spoke about changing attitudes to disability based on the time she cared for her first husband, famed scientist Professor Stephen Hawking. Lord Winston, an internationally-renowned professor gave a captivating  talk about the child’s brain and how the human mind works. When asked about Parkinsons Disease…

  • Reading

    PD Related Suggested Reading…

    There are plenty of publications out there related to Parkinsons which provide an alternative way to expand your knowledge and awareness of the condition and relevant research.  If you have read something and wish to write a short review we would love to share it for our fellow champions to find out about and possibly comment. 

  • Event,  Replay,  Research,  RIG

    The road to new treatments for Parkinson’s and dementia

    Prof Giovanna Malluci delivered the 7th Edinburgh Parkinson’s Lecture at the University of Edinburgh on Monday, 17th September, 2018 This fascinating talk describes a different approach taken to research which has yielded very promising results in mice models, and not just for Parkinsons but many other neurodegenerative diseases. Replay the video here: https://media.ed.ac.uk/media/The+Edinburgh+Parkinson’s+Lecture+2018/1_ew09ukjo Thanks to our sister group at the Edinburgh Parkinsons Research Interest Group for organising this talk and recording.

  • News,  Parkinsons UK,  Research

    Medical cannabis and Parkinson’s UK 

    Cannabis-derived medical products have been in the news lately, after two boys with epilepsy had their treatments taken away from them.  On the back of the spike in public profile, the government has moved to legalise such products in cases of ‘exceptional clinical need’. In turn, Parkinson’s UK has moved to support this shift – comparing the re-classification to how morphine is used in medicine. The statement in response also made reference to the potential benefits of cannabidiol for Parkinson’s symptoms such as pain and sleep problems.   Parkinson’s UK head of policy and campaigning Laura Cockram said: “We want to seek the views of people with Parkinson’s to guide…

  • Event

    Kinetics: Parkour and Parkinsons

    Sue Wyie’s film is being shown at the Cambridge Film Festival later this month. Sue’s experience of being diagnosed with Parkinson’s spurred her on to write a play called Kinetics: Parkour and Parkinson’s, which is now a film, Kinetics: The Desire to Move. Kinetics explores her coming to terms with the shock of her diagnosis while working as a drama teacher, and her unlikely real-life friendship with a rebellious 16-year-old student who is found free running on the school roof. Sue’s film has already done so much to raise awareness of Parkinson’s and to help others who are coming to terms with their own diagnosis. Here’s a link to the…

  • Event

    Taking Control of Parkinsons – 31Oct18

    Recently diagnosed with Parkinson’s? Join us for a day to find out what’s on in Essex to help you take control.   10am-3pm, Wednesday 31 October 2018 Christ Church URC rooms, 164 New London Road, Chelmsford, CM2 0AW Partner/ supporter welcome. Free lunch included – booking required. For further details and to register a place contact Kecia Harris kharris@parkinsons.org.uk or call 0300 123 3676     Note change in venue due to power cut at the original venue. PARKING:  The postcode won’t take you to the parking, Below is a map of how to get to the parking on Bradford St and a photo of what it looks like from…

  • Event,  RIG

    Ruth Herman (EoE RIG)

    Diagnosed four years ago, Ruth is still doing pretty well and participating in Parkinson’ UK activities.  Her volunteering for the chairty includes speaker secretary and committee membr of the West Herts Branch, and of course membership of the East of England Research Group.  She is not a scientist and her background is firmly in the area of communication.  With a PhD in propaganda (18th century style) she is wary of any writing that is not clear and accessible to its intended audience. So her aim in the Group is to encourage researchers to think about the words and other communication tools they are using to get their message to the…